Our Commitment to You
My basic premise as a practicing physician is that I cannot take good care of my patients without taking good care of their data. And I cannot contribute good research without taking good care of people. My care of each patient starts with respect for individuality.
Individuality and privacy are the keys to this Website’s commitment to you. Our expectation of you as an anonymous participant is that you accurately share the details of your story. If you do, we hope that together we can overcome the limitations of the label “autism” that covers a perplexing variety of symptoms and strengths that are far more complex than the defining problems of communication, behavior and social interaction. Even “Autism Spectrum” scarcely begins to offer a useful metaphor to individuals seeking answers.
This Website’s promise is a scientifically valid, statistically reliable tool for capturing not your label but your symptoms, exposures, life events, lab tests, and strengths. With those details that define you as an individual, we match you to groups of others with whom you can share reports of failure or success to guide your quest for effective treatment options.
Sidney MacDonald Baker, MD, Founder.
We ask that you not provide to us any personally identifiable information, but to register only with a first name or alias, which will appear within the Website as you use it and on printed reports. To the extent that you provide any “personally identifiable information” (i.e., e-mail address or other identifying information) along with your alias, our staff may be able to link that to your medical data. If so, we will take reasonable efforts to ensure that that link is used only for the purpose of responding to your communications. We generally do not maintain a permanent accessible record of that link. If you live in a very sparsely populated postal code area and the first name of the subject of the data is uncommon and recognizable we suggest that you pick an alias to preserve complete anonymity. Free anonymous email addresses can be obtained from several internet service providers that can be found by searching on the Internet for “free email”. The information you provide to us is subject to disclosure pursuant to judicial or other government subpoenas, warrants or orders.
Some of the information we collect via the Website is gathered and maintained through the use of “cookies” and other methods. A “cookie” is a small file that is saved on your computer and that contains information about you, such as your user name and password. As a result, we are able to (a) recognize you when you access the Website so that you do not have to re-enter your personal or other information each time you visit the Website, (b) customize and personalize the content we make available to you, (c) maintain the “state” of your current visit (e.g., to maintain a list of your most recent searches), and (d) alert you to new features.
In addition we may collect certain non-personal data in connection with the Website. For example, we may collect information on the browser that you use to access the Website, the operating system that you are running, what items you clicked on the applicable web page, how long you viewed a certain page, and information about the website you accessed immediately before you accessed the Website. We may aggregate your non-personal data with the non-personal data of our other users or other non-personal data collected offline. We also collect and analyze general traffic patterns within our Website to help maintain the flow and content of the Website, and we may use some or all of this anonymous aggregated information to support our commercial activities or for any other reason.
We may from time to time send information or offers to the email address you provide to us. If you prefer not to receive such email, please follow the procedures set forth at the end of each such e-mail explaining how to have your email address removed from the applicable email list. Alternatively, you may contact us to “opt-out” of receiving such email.
We do not knowingly solicit, collect or retain information provided by children under eighteen (18) years of age. If we have received information from any unsupervised individual under age 18, please let us know and we will delete it.
To prevent unauthorized access to your personally identifiable information, maintain data accuracy, and ensure the correct use of such information, we have put in place physical, electronic, and managerial procedures to attempt to safeguard and secure the information we collect, including, but not limited to, forms authentication and password encryption. However, no safeguards or security procedures are completely effective. We urge you to take all reasonable precautions to protect your personal data, which should include never sharing your username and password with anyone.
P. O. Box 511
White Plains, NY 10602
By Phone: 914-689-5588
By Email: Contact Us